Sleep Apnea, CPAP Machine and CPAP Residual

CPAP machine, just like I use.

It adjust itself to give your

body the correct amount of

air that is needed. Used for

people with sleep apnea.

Sleep Apnea - A potentially 

serious sleep disorder in which

breathing repeatedly stops

and starts. 

Residual EDS - typically defined

as daytime sleepiness that impairs

functioning despite CPAP therapy.

I know I have been really open

with my health on here, I do that

mostly to allow folks that might

have issues, new to things that I suffer

can ask me questions. 

Anyway, back in 

2005 I was having a big

issue with being sleepy during

the day. It got so bad that I 

moved like the walking dead.

I knew there was a big issue when

I started dozing at red lights. 

I went through 2 sleep studies.

In a seven hour sleep study I 

slept, completely for less then 3

hours. I stopped breathing or had

issues with breathing 400 and some 

odd times. When I stopped breathing

the longest period was 33 seconds. 

Oxygen was not getting to my

brain, causing major migraines.

But little did I know it was

affecting my muscles and nerves,

due to lack of oxygen. 

In the beginning I felt AMAZING

once I adjusted to the CPAP

machine. But I never did 

kick the sleepy feeling during

the day completely. 

As the years went by the sleepy

through the day got worse.

By this time I learned that the

sleep apnea had caused my

Fibro. So, since fatigue goes 

hand in hand with Fibro, I just

put it off to that. But over a yr

ago I mentioned it to my sleep

doc. Since my CPAP machine links

up to a program on the internet that

the docs office links up to, it shows

my machine is working well,

no mask leaks etc. But there is an 

issue as to why I am still

sleepy...

It is called CPAP Residual or

Residual EDS,  daytime

sleepiness due to using a

CPAP machine. I read up on 

this and basically out of all

the folks that are put on a CPAP,

only 10 percent have this issue.

YAY!!

Leave it to me! 

I was put on Suniosi,

a newer treatment.

I took it for the first six months and

was so happy to stay awake during the 

day that I did not notice a strange 

affect. The second six months, I 

noticed that I clinched my jaws.

I just put that off to COVID, thinking

maybe the issues and stress of 

what he world 

was dealing with was affecting

more then I thought. 

However, once I forgot to call

the script in to the pharmacy,

considered a controlled substance 

and for whatever reason, NO 

pharmacy around here keeps it

in so it took five days for it to be

ordered and shipped to them. 

During that time I realized 

I was not clinching my jaws.

Another time, a the yr mark of

me taking it the insurance

company requested authorization

again from the doc. Causing several

day delays of not having it. I noticed

again, no clinching. 

This last six months the clinching

got worse, I started clicking my

teeth, not grinding, but 

clicking and also pushing

my tongue at the bottom

of my teeth. 

Now, with all that said, 

I had an apt with the doc for my

six month appearance. I mentioned

all this to him so I have now

been changed to an older

med, today was my first day

on it. Still the jaw clinching but

it will prob take a day or two 

for that to stop. 

I had a better day, if seems 

to work better on me

but that can change once it is

my system. 

We will see!!!

Telling you all that I will

continue...

I have fought to stay off

pain meds for the fibro for

15 yrs now. Each passing yr

it gets worse. There are nights

that I have issues going to sleep

due to pain. That could also be

part of the reason I stay sleepy. 

Anyway, I have an apt with my

general doc in Aug. I plan on 

talking with her about going to

a pain clinic. At least to have

something here for when I 

really, really need it. 

I think it is time I 

finally admitted that this

is not getting better and 

I can't cont to have any

form of life without help.

Keep me in your 

thoughts please,

Pam