My Past Week

Morning all....

this is a warning, this post is about

FIRBOMYALGIA 

so if you are tired of hearing or reading

about it then you might wish to

jump over to another blog.

I do not post about it for pity I 

just post for info, to teach about it.

I have dealt with this issue since

the spring of 2006. With each passing yr

things change, they tend to get worse.

Keep in mind that someone that has

fought with this issue for 12 yrs might

have different problems than I.

It is not a one problem illness.

This winter has been a rough one for me.

I have dealt with what I call burning

pain. Fibro is thought to be caused from

nerves, so that would probably explain why

I feel like there is a burning pain that

feels like it is right under my skin.

This is new me, I never had this type

of pain in all these years. I have always

had the flu like pain, all over. 

Then there are the days that it might

just be a horrible pain in just one

area of my body. That pain can hang around

for days, weeks or pain....but then again,

it can move to another part of my body.

This is not a illness that you can say

from day to day that you will have pain

here or there. It tries to keep you on your

toes, keep you guessing from the minute

you wake as to wear you will hurt.

Oh and then there is the fatigue!

That and the meds can force me to crash

on any given day. 

When I crash, I sleep all day.

Any given day that consist of change can cause

more fatigue and pain.

This week I was trying to help out a friend.

He was burned back in mid Jan. and 

needed graths done this week.

He had a cousin that was going to drop him

off at the hospital and come back and 

get him when done.

I have had several surgeries in my life and 

my mom has always been there, taking me

and staying with me. 

I just could not think about someone having

surgery and no one being there.

I told Tim I would take him.

Although I did a lot of sitting and waiting that

day, it was not in the comfort 

of my home, my body was not happy.

They kept Tim that day due to the fact that

they knew he lived alone and he needed

help in wound care.

After a long day at the hospital I went back

the next day. Then the next I hauled hay,  

cleaned out two stalls and messed with 

Misfire and the other horses. 

Thursday I tried to get somethings

done around the house but I found myself

doing errands, then just sitting!

During this time I was also doing morning

and evening checks on Tim's dog and letting 

him out. 

Friday, I was at Tim's house by 9:30, picking up

things he needed me to bring to the 

hospital. He was going to get to 

go home. I was there by a little

after 10 and they FINALLY got him

dismissed at 3:30! 

Okay.....keeping my mouth shut here on

hospital dismissals....

Got home after getting Tim in the house,

his dog greeting him and mom bringing

a meal over to Tim. I came home but I had

to change, throw on a touch a make up

and I went out around 5 to pick up 

another friend, Chris to go to visitation 

for another friends mom. 

I think I have been to more funeral homes

this year then all the times in my life.

Chris and I did not stay long but then

I had to drop him off. Home by 7!

No matter how tired, my body was yelling

at me....

LOUDLY!

You see, I pushed all week but not only did

I pushed, I pushed doing things that 

I don't normally do. My body don't 

like doing things it is not used to, even

if its just sitting at a hospital. My nerves 

start acting up and then the muscles get

involved and start spasming or just plain

fill with pain. 

Now to take this even further, 

I used to be what a friend called the 

CLEANER FROM HELL!

My house was always clean, I was always

cleaning on something.

The last five years being the worse with 

this crap so much has gone to the wayside.

I wash clothes but most days they never make

it past the top of the dryer. If they do make it

upstairs, they very seldom make it to the drawers

or even hung up.

Thank goodness for

a dishwasher for hiding dishes  that need washing...

that is if they make it to the dishwasher.

Most days, they are on the counter or in the

sink. 

My mom has taught all my life that if you will

put things up where they go when you 

are done with them then clean up is easier....

I know this, but sometimes, putting things up

is just more than my body can handle.

In a word...my house is a mess.

I sit here looking at all the stuff that needs

to be put up and I just want to shut down.

My daughter will tell you that I am a hoarder.

But what that amounts to is nothing gets where it

is suppose to be. Then there is the things I bring

to the house thinking it would make an awesome 

craft project, but I never get around 

doing anything with it. 

It took 3 months to redo the guest room....haha....

3 months on what used to take maybe a week at most.

I have a hall and two more rooms to do.

Being retired, limited funds this is work I will

have to do cause I can't hire it done.

I tell myself that I will get it done.

Social events....went to the funeral home a 

couple weeks ago for visitation with 

two friends....we talked about how my social

life has changed. I hate making plans with others

cause I don't want to disappoint them when 

I can't do what was planned. 

One big issue...I know these things yet I still

try to do what I have always done, like this

past week, and then pay. 

Two years ago my doc sent me to a RA

doc since they treat a lot of fibro patients. 

It was eye opening.

She told me that I had to learn to let go....

hahaha, if I let go anymore my home will

take me over, either from crap that needs to 

go, things that need to be put away or 

cleaned or just organized.

But the big eye opener was when she told

me I had to accept that I was not who I 

used to be!

I know this but I had never had someone

else tell me that.

It was a slap in the face. 

I am still having issues accepting that

my life has changed this much.

When dealing with someone with Fibro it

really depends on that person to 

know how they deal....

PRIDE.

I have a lot of pride. 

I don't ask for help.

I don't expect others to help.

With that pride comes a lot of pain cause

I don't ask for help....

and so it goes on and on.

So, if you are a friend of mine on FB

and a few are then this will explain about my

status on not being around for others this weekend.

Will I be resting.....I need too but I have things

I need to do so I will do them. 

I used to clean my brothers 4 bedroom, 3 bath 

home from top to bottom - 4 hours....

In my case now....it takes me 4 hours to 

think about what I need to do and I might

make a slight dent in it.

Thank you for taking the time

to read and trying to understand 

FIBRO.

Here are a couple of commercials 

you are probably seen but not paid

a lot of attention too.

https://www.ispot.tv/ad/73X1/lyrica-before-fibromyalgia

https://www.ispot.tv/ad/wGeS/lyrica-a-day-at-the-park

thank you for stopping by,