For those that don't understand
what it is like to live
I do have great days. Saturday was
one of those where I was
able to move my rear
and get somethings done.
I was able to clean out my winter
closet and 5 bins of clothes that I
had packed and stored in the bottom
of that closet. I was able to do
more cleaning, sorting and
What was strange about that is,
I could not sleep Friday night.
I had to take something for the
pain and the last time I looked
at the clock it was 2:30.
I was up Saturday mornning
at 6 and I went till 10:30 that night.
If you have Fibro you have sleep issues.
I also have sleep apnea but
even with a CPAP machine
I still have issues getting
good quality sleep due to pain.
Yet on the flip side, if I can sleep
it helps me deal with the pain.
I paid yesterday for my good
day Saturday. I slept off and on,
more on, till 3 yesterday afternoon.
At 1:30 last night I had to take
something for pain to sleep.
But during the days....
Fatigue is unreal,
I fight most days to focus
on what I am doing. I have
This is just a small list of things
you deal with when you have
And this are just a few things
that bring on a flare.
What is a flare.
It is where your everyday problems,
pain, fatigue and other issues
are more intense.
A flare can last a day or
longer. I actually had one in
in 2013 that started in May
and ended in April the next yr.
Working just about did me in.
You don't realize what coming till it
hits. As the years have gone by it has
gotten worse to deal with.
This is the reason I had to retire.
I could not even focus on the easiest
Once I went to the dentist for a cleaning
only to have my mouth and gums in pain
for 3 months. That never happened before
or after, but it is a chance you take.
You deal with headaches along with
the over all wide spread pain.
When I first developed this mess
to the point I noticed it, I felt
like I had the flu. I ached all over,
and it never went away. I began to think
that I ached this way cause I had
put on weight. It was not till a trip
to the sleep doc that I was informed
on what was going on.
Every time you turn around
there is something new that you
I have friends that would never know
I deal with this issue unless I have
told them....why, cause I choose to smile
through the pain or if it is really
bad, I hide.
Hence the reason I dislike summer so bad.
Although I have to say that my surgery has
helped a lot with my heat issues.
I was out and about in it the day of the
eclipse and I hardly broke a sweat.
That is amazing!
There is so much to learn and take in
if you have Fibro, like the
newest issue I deal with....twitching
of the muscles. My legs sometimes feel
like a pin cushion. A twitch here and
another here. Constant....one right after
the other. If not there, my arms, under
my eyes....and it goes on and on.
More info later.
Thanks for stopping in,