Thought I would continue the health blog with
where I left off….FIBROMYALGIA.
Not only do you suffer from pain, and even while
on the meds I still do, but not like before meds. I
have experienced other symptoms, and reading
other blogs, fibro sites and hearing other stories
I have come to realize that not everyone with fibro
will suffer in the same way. Not all will deal with the
feeling that your fingers, hands and ankles feel like
they are swollen. I have, usually when the pain is
mid I notice it the most. Not sure if it is there when
the pain it really bad, or if I just don't notice if cause
I hurt elsewhere. But at times it becomes
uncomfortable to deal with.
There are other things that I have questioned
because at this point I am not sure if some is
from meds or the Fibro. But I usually key in
the info on the net and it usually comes back
as a symptom. At that point I just say, "oh yay,
How about the temp? Oh yeah, I can't seem to
take really hot temps anymore. It becomes too
much to bear. As for the cold, I get through it
pretty well since I am at the "flashing" stage of
life also. But seriously I am not sure if my tolerance
to cold is part of all this. I do know that I only wore
a coat once this past winter. But, there is a syndrome
that usually appears in folks with Lupus or Fibro, it
is called Raynaud Syndrome. Apparently the veins
start to narrow in your toes and fingers. I have it in a
couple of my fingers. They will get cold, turn bluish
and hurt so bad. When the color is coming back, along
with the hurt, there comes this throbbing. Not fun at all
and makes typing hard. I have also read that this can
affect your nose also.
How about a rub down or going to the chiropractor? I
have read that some people really do well with this. I
can do the rub down if I am not in major pain and I did
a chiro for 2.5 yrs., with some relief. The issue with the
chiro was that I hurt so bad for a week after an adjustment
but not only that, I could feel what he did working out of
whack the next day. Apparently my muscles did not like
being rearranged with the bones so they would just jerk
them back where they wanted them. I had to stop going.
Back to sleep apnea, if you have sleep apnea you have
done reading on your own and you have found that you fit
a lot of what has been talked about. Like I said at the
beginning I was not told all that sleep apnea could cause,
most I have learned on my own. The internet has been a
great source of info. If you have a symptom that pops up or
is new, check it out. Don't be afraid to read up on it.
Like I said, the sleep doc is the first that told me I had fibro,
he was also the one that told me that asthma and acid
reflux went hand in hand with sleep apnea. Wow….really?
But they came first, or did they? I think the doc was right
when they told me I had sleep apnea as a child, so
therefore the asthma and acid reflux came after, but since
I was not aware I had the sleep issue, I thought they came first.
Somewhere through all this I started having tummy issues.
Great, another shoe dropped! I was having bad pain in
my upper intestines, on each side under each breast.
You know where I am talking right where the large
intestines bends or curves. Plus there was the soft stools.
Hey, gotta tell it all.
It started all like this~ one day I started to get ill.
My tummy would feel close to being sick every day.
It was like it was rolling and flipping but I never got
physically sick. This went on for a couple of weeks.
It would let up here and there but it was with me more
than not. Next came the actually being sick stage, that
stayed with me for a couple of weeks also. Next came
the pain. Was somewhat happy that they all did not hit
at the same time.
Okay, to the tummy doc I go. All these test were ran. The
scope down the throat to look at the tummy and the upper
part of the intestines showed nothing, the scope up the
"exit only" section of my body showed nothing to be
concerned about. The ultrasound of the gallbladder
working, showed nothing. In between the test, I did some
reading and it sounded like I had IBS, Irritable Bowel
Syndrome. Yep, sounds like a lot of fun. After talking
to the doc, it was determined that is what I had. But
being a doc, he had to rule out anything bad with the test.
Did you know that IBS is also another issue that goes
hand in hand with sleep apnea. No, I didn't either.
Okay, so far we have covered the sleep, the asthma,
the acid, the fibro, and IBS…not to mention migraines.
Next we will look into high blood pressure, high sugar
and heart issues. Stayed tuned!
Thanks for stopping in,
Tuesday, April 30, 2013
Posted by Pam Jackson at 10:09 AM
Monday, April 29, 2013
In the fall her school, Donelson Christian puts on a Drama but in the spring they put on a musical. The musical this year was Fiddler on the Roof. As always, DCA put on a fantastic show. The students do an amazing job. The acting, the singing, the stage props, the back stage workers……all amazing! Holly's part this last play was Golde, the leading female part! The leading guy and Holly did a great job together. They even shared a bed in the dream part of the play! Something I don't think I will let Holly forget!
My sis in law, Lori could not make it, her and my brother Ray were really sick. But Chase (nephew), his wife Susan and my great nephew Cole were there, along with Lori's mom and dad who drove in from Franklin NC to see the play, Holly's mom and Dad, my mother, my grandson and I all attended. I know that has to mean the world to Holly.
You can't video tape these performances due to copy right and you can't take flash photography. I took the camera anyway cause I figured I would get some after shots of the play. I did not take the tripod due to limited space for no flash photography. But yes, I got some shots after the play.
At the end of final play they award the teachers with flowers and a gift card, as the performers came on stage to bow, I saw the tears on Holly's face. This was it. After the flowers and cards are given the performers make their way off stage. The best pic was Holly going to the end of the stage with my mom standing there to give her roses, and Holly in tears. Drama has been a major part of the last 4 years of her life, going to be a big difference.
Anyway, enjoy the pics. I have enjoyed each and every play she has been in. I even enjoyed a copy with just her and I before she was in drama. I am also going to miss this part of Holly's life. Thank you sweetie for the laughs you have given me, not only through your plays but in your life. I love you and I bless you on the next adventure coming in your life – Knoxville!
Posted by Pam Jackson at 9:52 AM
Sunday, April 28, 2013
I am back......
So I left you off at what illness' and issues can come just
from having sleep apnea. Keep in mind that these issues
are things I have ran across......okay, that I developed
from having sleep apnea. Whenever something would
come up with me or my body that did not makes sense,
that hung around or really became a pain, I pulled it up
on the internet. I have been totally amazed at what you
can develope from just not sleeping, or your breathe
being cut off when you do sleep.
I also want to state that although these are things I have
learned as I have lived with my sleep issue, my sleep
is under control. I was told that with my snoring issue
as a teen and later into adulthood, it appears that I have
had sleep apnea since I was child. Oh yay, how much
fun has this been.
Even though my sleep is under control with the aid
of a CPAP machine, I have to admit that I don't use
it when taking naps, and the fact that the damage had
been done. Years of sleeping or shall we say not sleeping
due to my sleep apnea caused issues to start forming that
I was not aware of, issues that could not be reversed.
Sleep apnea can cause a lot of issues, issues that eat
at your system and you have no clue. Like I said, mine
started really young and since the damage had been done,
there was no correcting it. SInce I found out I had the
obstructive sleep apnea, my health has gone down hill....
and what seems like a fast pace to me.
First off, the migraines. They were what tipped off
the nuro doc. I had battled them since I was in my
early 30's. Before I was told they were migrains and
before I was told they were caused from sleep, I went for
1.5 years with a daily headache. One a scale of 1-10 most
days were on the low scale, others were mid then there
were the major 10's. That is when I finally broke down and
talked to the doc to find out they were migraines. I thought
it was just allergies.
Next, I know people wonder why I don't try to lose
weight, I have but with sleep apnea you have no get up
and go. You have no energy. You think you are sleeping
fine all night and wake feeling like you have not slept
a wink. Even on a CPAP machine, your energy does not
come right back, so no energy, no exercise, weight gain. The
more you gain the more it plays with the sleep, and the higher
your number on your machine will go up. I have fought the battle
of weight since I had my first child. The sleep got off, the weight
went up, and on and on and on. So I have been fighting for yrs to
lose only to watch the weight go up.
Third came the pain. The pain all over. The achy, throbbing,
deep pain. I thought it was due to the weight gain so I wrote it
off, just like I did the headaches. One day seeing the sleep doc
I mentioned it. He walked behind me, laid his hands on my shoulder
and I about shot up off the table. He pointed out a couple of more
areas asking me if they were sore. He then told me that I had fibromyalgia.
Told me that it was caused from my muscles not getting enough oxygen
cause my breathing was being cut off. He seemed to think that it
would go away once we got the number changed on my machine
changed. LOL.....nope, that did not happen. I have fibro and it hurts.
I started feeling the pain in 2006, saw the sleep doc in 2008 when I
was told this, the machine change made no impact, but I did not
want to fight this with meds. I hurt, and hurt and it got worse and
worse. My son's wedding was coming up in May 2011 and I was flying
to Calif. to be there and to photograph their wedding. I finally broke down
and talked with my doc. She put me on Cymbalta which started to work
right away. Since then, we have had to take it from 30mg to 60mg. March and
May of 2012 put me down for up to 5 weeks. Not really down, but in terrible
pain so up the meds went. That was in August and I have just now starting
to ache some, here and there. Not really sure where we go if the 60mg stops
Next blog I will continue to tell you more.
Thanks for stopping in,
Posted by Pam Jackson at 7:17 PM
Friday, April 26, 2013
Oh my gosh, where did I leave you guys hanging yesterday with the first health blog? You forgot, funny I have that same issue. I think some of my meds do that to me also, and age I am sure does not help.
The light went off, I remembered! It was the last removal of the knot on the gland. I have had several surgeries since then for this that or the other. But those are things I really don't feel like going into, this is more about illnesses.
I developed asthma from two bouts of bronchitis. I had some really bad issues getting that under control but I have not had an issue in about 15 yrs. Not sure I really have it or ever had it.
In 1998 I started chewing tums like mad. Heartburn every time I ate. Then there came another issue with sleep, waking with this burning in my esophagus. To the doc I went, was being treated by over the counter meds. One night while reading to my son I had a really bad bout of something. My brother came and got me and my son and took me to the hospital. I was convinced I was having a heart attack the pain was above and behind my left breast. After the ER treatment I was admitted to the hospital for the night. I did not sleep a wink, was so afraid if I closed my eyes, I would die in my sleep. There was a question in the EKG cause it had a little blip in it but being I had never had one, there was nothing to compare it with and that blip might have just been a normal for me.
The next morning, dragging and still hurting I was sent to a heart doc for a nuke stress test. All came out well with that and I was told it was all acid reflux. Off the over the counter meds and put on something a bit stronger that would work better. I am still on that med for acid reflux.
So there you have that, asthma and reflux within a short time of each other. Crap, my early 30's and I was starting to fall apart. But as you guessed, it did not stop here.
When I was a teen living at home my mother would mention from time to time that it was a wonder I could sleep, that I snored so loud. After I married I remember nights that my ex would wake me up and ask me to turn over so I would stop snoring. Never thought a thing about that, I was good cause it was not bothering me. But then into my early 30's I noticed I was having issues with waking during the night, usually sweating. I had hormone issues before I got pregnant with my son so I figured that I was going into perimenopause. I had heard that could start in your 30's so that was my guess.
As life went on I noticed that I had more issues sleeping. I could be physically dead tired but could not fall off to sleep. That was when I would get things done after the kids were put to bed and I stayed up. That would last about a week to two weeks, than I would get sick and crash. But I could sleep no matter how tired I was. As the years moved on I found that I was waking in the morning feeling like I had never closed my eyes. The difference now was that I could not stay awake. I closed my eyes and slept whenever I got still. By this time I was riding to work with a friend. He drove 3 days a week and I drove 2. On those days that he drove, I would wake, take my shower, take a nap, put on my makeup and head out. I would meet him and I would sleep to work. I took a nap at lunch and I would sleep home. Just barely able to get in my car and get home before I would sack out on the couch or the chair (sitting straight up).
This got worse ever still but I really did not think a lot of it cause I was dealing with major migraines and being treated for them. I guess I just thought that the meds were wearing me out. After being on preventative migraine meds for a little bit and them helping some…..they stopped working. Back to the nuro doc. I just happened to mention that the headaches were there when I woke, with me all day and there when I laid down to sleep. That set up a red flag he wanted me to have a sleep study done. Well the thoughts of having sleep apnea did not settle well with me. I was scared to death.
Off to a study I went and yes, I had sleep apnea. If you know anything about it you will know what I mean when I say my number on the machine started at 8. That is the amount and force of the pressure going into your nose at night to keep the airway open. This was in 2005. Since then I have had two other studies that showed that number had changed. I went to a 12 and now at a 14. You see when you have sleep apnea, you don't feel like doing anything and exercise is a memory, there is no energy there to even get you to walk. Then you gain weight. Weight causes the apnea to get worse. So, there you have what they call a catch 22!
I very seldom suffer from a migraine anymore. But the deal is, I was not told what all sleep apnea would and could cause. Most of what I know about it I have learned from reading about it. Keep in mind, your body needs rest, it needs that deep sleep….most apnea folks never make it to that point and your body starts to suffer.
Next blog will go into some of the issue that can develop and have developed with me just from having sleep apnea.
Stayed tuned to this same station (blog), same time (whenever) and learn more.
Thanks for stopping in,
Posted by Pam Jackson at 7:59 AM
Thursday, April 25, 2013
Keep in mind what I blog about here today is my experience and it might not be the same for all. Keep in mind that most of the things that I tell you are things that have happened and through studying and researching the net I found that it was a part of what I live with daily. I don't read this stuff and make up the pain or the issue, it is there already when I go to search for a cause. Okay…..so what is she talking about now! My health!! My health that I have watched and experienced slowly sliding down hill for years now. I suffer from sleep apnea, fibromyalgia, IBs, asthma, acid reflux, migraines, back issues, skin issues, Raynaud Syndrome, hot flashes, fast heart rate, diabetes and possible blockage in the heart all at the ripe old age of 53. But I started falling about years ago.
When I was a child I had eczema behind my knees. Made for sitting on your legs in a hot summer hard to do. As I grew, it migrated around. At one point, on the top of my feet and between my toes. There was a time where I could only wear white socks cause the dye in them would cause me to itch so bad. It moved again to my forearms. Washing dishes as a kid and only being tall enough to reach over the sink without resting my arms on the silver band around the sink was not easy, so there was where it developed next. From there, the inside of my hands and between my fingers. Rubber gloves was no help at all cause the hot water to wash dishes would make my hand sweat and they would start the worst itching. I even lived with it there for years, into adulthood and while I was a mother to my first child. I no longer, (where is the wood I need to knock on?), have to deal with flare ups much anymore. But to my understanding, it never leaves your body so from time to time I will have a mild case of it but it has been awhile. Nothing much helped me to deal with this except a cream that I was given years ago, Lidex cream, a steroid. That was my saving grace.
I went home with a thin scar on my neck, sewed up so nicely. But, fluid built up in there and it finally busted, making that nice neat thin scar, big and wide and ugly.
Four months of wearing a bandage, four months of my neck being in a total raw rash cause my skin don't even like hypro-allergic bandages….I changed docs, I was not healing. The new doc said, pour hydroperoxide in the opening and put Neosporin on it. I was healed in no time. Thanks Doc…..but it left a nice…..UGLY scar that I still live with. Thank goodness it has faded and don't look bad. LOL….and oh the stories I have told about how I got that scar. I had some fun with it.
Whoops…..it is not over! Nine years later a knot reappears on that spot. New doc, new insurance, same neck, same spot…..but so much as changed. I think the first time I stayed in the hospital several days for surgery this doc had a surgical area off his office. First time, I was put to sleep, this time the area was put to sleep. Same results, bacteria settled there. Apparently what happened was that a partial or piece was left behind after the first surgery, it laid dormant all those years, only to flare up after me having a cold or something. So in the process of sewing the area up I just ask him what about it coming back again, can you just not put a zipper there so I don't have to go through having it cut open again! Yeah, well you know that did not happen, but with luck, the knot has not returned.
Posted by Pam Jackson at 10:28 AM
Wednesday, April 24, 2013
My friend Brian has a corvette that he took up there to be in the show. He had a pretty red one and sold it but recently got him a burgundy 2003 - 50th Anniversary one. After walking around to view some of the cars and trucks we pulled out the chairs and sat with a friend of his that has a 1963 black corvette.
Posted by Pam Jackson at 7:24 AM
Tuesday, April 23, 2013
This year I was honored when I was asked to do her prom pics again. Chelsea mentioned to me that she wanted to do her shots this year around a barn. So glad that she mentioned that cause a barn I could give her.
My brother has a nice barn on his property and thankfully he has told me I can do any shoots I need to out there. Thanks Ray so much, it is an awesome place to shoot.
I photographed Chelsea this year with her friend Josephine and Josephine's boyfriend. Two shoots combined into one, works great. The barn was a great setting for those pretty dresses. Thank goodness it had not rained the day before that would not have worked out to well. It was a beautiful sunny day and the girls looked great.
Posted by Pam Jackson at 7:18 AM
Wednesday, April 17, 2013
After a trip to the bathroom and back to the living room my visitor decided to fly right out the front door that he entered in. I had propped it open in hopes he would.
After taking a pic, I always have a camera, I called my mom, we tried calling my brother who lives about 5 minutes away to come get it but I could not find anyone! After throwing rocks at it, thinking of poking with a stick and finally deciding to go to the back door I looked and he had gone back in. The KING and I ran up the stairs.
So what does this leave…..bats in my belfry now! I don't even want to think about it. But I am thinking that it is time for the KING to start earning his keep, or he will be dethroned.
Posted by Pam Jackson at 10:18 AM
Tuesday, April 16, 2013
Posted by Pam Jackson at 1:11 PM
Monday, April 15, 2013
Yes, maybe that is the best place to start.
April 13, 2013, she is all grown, looks like woman which I am sure was hard on my brother and Holly's mom. Beautiful, no other way to say it. I first saw her ready for her Banquet at Gaylord Opryland Hotel where her and some other girls were coming for me to photograph them. They were all just stunning, but for now I want to just make this blog about Holly, my niece.
She appeared in a black and white dress, make up done and that fantastic smile of hers. She has so much going for her but I am not sure she knows that yet. All though Holly appears very self-confident, she is nervous, just like every time she steps on stage at school for a play, and every time, it all comes out perfect!
All the girls~ These beautiful ladies did not have dates for the banquet, but that is ok, cause they all have something special that the right guy will one day find. I am sure they had a blast!
Posted by Pam Jackson at 10:18 AM